5

Over The Hump!

This past Tuesday I had my second treatment of my 4th round.  I officially have 2 rounds left.  I should be done with my last treatment at the end of September.

After my 3rd round it still felt like I had a long way to go to see then end of treatment.  Now that my 4th round is over it feels so good to be past halfway.  The first treatment of each round is usually the worse, I just feel worse after the first treatment.  For the most part I have the nausea under control.  My stomach usually just hurts a few days after and there is not much relief.  Food doesn’t taste the same.  I have also felt pins and needles in my hands and feet, and in my face sometimes.  The second treatment is a bit easier to take and my week off also follows it.

My blood counts have been good throughout treatment.  The only things that fluctuate are my Magnesium and Potassium.  All in all I have been doing well going through chemotherapy.

I did go in to see my primary Doctor about my thyroid.  She sent me to have an ultrasound done, which showed a small nodule on the right side.  So, my Doctor sent me in to have a thyroid biopsy done.  The first time I went in to have it done, the Radiologist that was to do it was looking at my ultrasound and felt that the nodule was so small that it would be nothing to worry about.  They decided not to make my neck a pin cushion and sent me on my way.  Well, my primary Doctor really wanted me to have the biopsy done, so I was back a few weeks later and this time the biopsy was completed.  I am happy to say that the results came back benign.

Chemo

Zane and I at my first treatment of my 4th round!

I was trying on hats at my last chemo treatment!  I mostly just go bald, but my nurse kept insisting I look at their box of hats.

Chemobonnetchemopenguin

Isaac has been doing great.  There was a concern a few weeks after we brought him home.  Part of his incision had opened up and the surgeons were concerned that it wouldn’t heal on its own.  They had contemplated going back in and closing it up and possibly taking out the plate that was in that area.  They decided to give him another week to see if his body would heal up and avoid another surgery.  Well, he must not want to go into surgery because the incision healed and the following week we were in they were able to remove the stitches.  He does still have his Broviac Line and is still getting heavy antibiotics every night infused through the line.  He will continue with the infusion antibiotics until his next surgery.  He will be having surgery on his palate and his first finger release in about a month or two.  We are still waiting to hear from the scheduler on a date.

Isaac loves to play the iPad or iPhone.  His favorite is to play the piano app.  He is great at sitting up.  He loves toys that spin.  He is working on crawling.  We bribe him with the iPad and he will work his way to it, in an army crawl his own style.  You never realize how much you take your kids milestones for granted until you have a child that all these milestones are a BIG deal.  Well, Isaac, he is a bit of a BIG deal around here.

Capes

Super Isaac and his sweet friend Super Avah flying over Children’s Hospital!

The Craniofacial department has a camera that takes a 3D picture.  These next two pictures show a comparison of Isaac’s head from the beginning of May, before his last surgery.  The pictures on the right are from May and the pictures on the left are from a few weeks ago.  You can really tell a difference in the shape of his head.

head3d head3da

swing

He loved this swing! He fell asleep while he was in it!

pianist pianopad

2

Chemotherapy Day 1

To start off, I had to take oral steroids Monday night before bed and wake up at 2:30 to take more.  The steroids are to help if I were to have a reaction to the chemo drugs.  I did not get much sleep.

Once I checked in at the infusion center and picked out my recliner for the day the nurse accessed my chest port.  She drew blood and sent it to the lab.  We had to wait for the results to make sure I would be well enough for treatment.  My numbers were good, so the nurse ordered my meds and started pre med prep.  She gave me Benadryl, Decadron (steroid), Pepcid, and Zofran.  After the Benadryl I felt extremely tired, but I couldn’t sleep because my legs were so restless.

  

The nurse then started the chemo drug Paclitaxel in the IV port.  It started slow to see if I would have an allergic reaction.  I didn’t react, so my nurse sped up the drip.  After an hour and a half the nurse accessed my IP (abdominal port) port to give me my second chemo drug, Carboplatin.  The port was working really well so the drip ran for about 1.5 hours.  I had to move from side to side every 15 to 20 minutes so the drug would move through out my abdomen.  I was finished with the drips a little after 3:00.

I think I gained 10 pounds with the complimentary lunch ( I do love food😉) and the 2 liters of liquid they pumped into my abdominal cavity.  It felt a lot like being pregnant.  My abdominal port is a bit sore, since they scrubbed it so well before accessing it.

They gave me a schedule to take my anti nausea medicine and I have been sticking with it and so far I have been good.  I slept well last night, I did wake up groggy.  I am just taking it easy and will try to get as much rest as I can.  Taking it day by day as we have no idea what to expect.

My next treatment will be next Tuesday, June 16.  I will be getting the Paclitaxel drug in my IP port.  The following week I will have off.  That week Isaac is scheduled for his next craniofacial surgery.

And of course, it is very hard for Zane and I to be serious, so he downloaded a Meme app and is having way too much fun with it!  

 

My friend had our kids yesterday afternoon and wanted to show support, so she dressed Isaac up.  So cute, I had a good laugh!

 
My amazing friend, Angie, made some images if people wanted to change their profile picture or cover photo on Facebook in support of my battle with ovarian cancer.  I thought I would post them here if anyone wants to save them and use them.

  
   

8

Hair is overrated

Is it?  I’ll admit this last week I’ve really been thinking about losing my hair and I guess I’m a bit conflicted.  Part of me thinks, “it’s just hair, it’ll come back.”  Another part of me thinks,”how cool would it be to do chemo and not lose my hair.”  I also think about how the kids will feel when they see their Mom has lost her hair.  I’ve searched the interweb for different head coverings.  Should I wear a wig, hats, scarves, etc?

I decided to go get my haircut short before I start chemo.  As I was driving to my appointment I had time to think about this hair thing.  This was probably the hardest haircut I’ve had, actually it really wasn’t.  However, it did really hit me that this is real and happening.  I realize I do love having long hair, but ultimately that doesn’t make me who I am.  The last time I cut my hair short I donated my hair.  It’s a bit ironic.  I will do this and darn it I’m gonna rock it!

TLong

Zane took this picture of me before I left to get my haircut.


TShort

Kyla took this picture of me when I got home!!

I will be starting chemotherapy tomorrow, Tuesday, June 9.  My Oncologist said I will have 100% hair loss by the third week.  So, I guess we’ll see what fits on my head best.

There are many side effects to chemotherapy, besides hair loss.  My Oncologist gave me 4.5 pages of the different side effects.  Everyone reacts differently, so I don’t know what to expect.  The nurse who scheduled my chemotherapy told me that it’s common to feel as if you have the flu a few days after.  Some common side effects are nausea, fatigue, neuropathy, joint and muscle pain.  To help with some of these effects I’ve been prescribed a medicine cabinet of drugs, it seems.  I’ll hope and pray for the best!  I have to fight like an Eagar!  Just like this Eagar!

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Our good friend has started a You Caring page to help raise money for medical expenses for our family.  If you would like to donate or share our page, please check out the page by clicking the picture of Isaac above.