This past Tuesday I had my second treatment of my 4th round. I officially have 2 rounds left. I should be done with my last treatment at the end of September.
After my 3rd round it still felt like I had a long way to go to see then end of treatment. Now that my 4th round is over it feels so good to be past halfway. The first treatment of each round is usually the worse, I just feel worse after the first treatment. For the most part I have the nausea under control. My stomach usually just hurts a few days after and there is not much relief. Food doesn’t taste the same. I have also felt pins and needles in my hands and feet, and in my face sometimes. The second treatment is a bit easier to take and my week off also follows it.
My blood counts have been good throughout treatment. The only things that fluctuate are my Magnesium and Potassium. All in all I have been doing well going through chemotherapy.
I did go in to see my primary Doctor about my thyroid. She sent me to have an ultrasound done, which showed a small nodule on the right side. So, my Doctor sent me in to have a thyroid biopsy done. The first time I went in to have it done, the Radiologist that was to do it was looking at my ultrasound and felt that the nodule was so small that it would be nothing to worry about. They decided not to make my neck a pin cushion and sent me on my way. Well, my primary Doctor really wanted me to have the biopsy done, so I was back a few weeks later and this time the biopsy was completed. I am happy to say that the results came back benign.
I was trying on hats at my last chemo treatment! I mostly just go bald, but my nurse kept insisting I look at their box of hats.
Isaac has been doing great. There was a concern a few weeks after we brought him home. Part of his incision had opened up and the surgeons were concerned that it wouldn’t heal on its own. They had contemplated going back in and closing it up and possibly taking out the plate that was in that area. They decided to give him another week to see if his body would heal up and avoid another surgery. Well, he must not want to go into surgery because the incision healed and the following week we were in they were able to remove the stitches. He does still have his Broviac Line and is still getting heavy antibiotics every night infused through the line. He will continue with the infusion antibiotics until his next surgery. He will be having surgery on his palate and his first finger release in about a month or two. We are still waiting to hear from the scheduler on a date.
Isaac loves to play the iPad or iPhone. His favorite is to play the piano app. He is great at sitting up. He loves toys that spin. He is working on crawling. We bribe him with the iPad and he will work his way to it, in an army crawl his own style. You never realize how much you take your kids milestones for granted until you have a child that all these milestones are a BIG deal. Well, Isaac, he is a bit of a BIG deal around here.
The Craniofacial department has a camera that takes a 3D picture. These next two pictures show a comparison of Isaac’s head from the beginning of May, before his last surgery. The pictures on the right are from May and the pictures on the left are from a few weeks ago. You can really tell a difference in the shape of his head.
























Emmett loves his brother. He loves to be close to him, sometimes a little too much.























