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“De-ported”

It’s been awhile since I’ve posted.  Last week I was “de-ported”, as the radiology team likes to say.  In other words, I had my chest port removed.  I had a CT scan a couple weeks ago and it showed no evidence of disease, YAY!  I asked my Oncologist if I could have my port removed if things looked good.

It has been three months since I had my last chemotherapy treatment.  My body still aches, but I am feeling stronger each day and my hair is growing back.  Before you know it, I’ll have enough hair to comb and style!  My eyebrows and eyelashes are coming back in full force.

  
This year we seem to frequent Hospitals as much as others go to the grocery store.  So, we are finishing our year off with a Hand & Palate surgery for Isaac.  Isaac will have his palate repaired, which will improve his swallowing and speech.  He will also have his first syndactyly release to give him index fingers on each hand.  

We are not exactly looking forward to the recovery for this surgery.  Very much hoping that the time goes by quickly.  As much as we love his hands how they are, we are excited to see his development as he goes from a mitten to separate fingers.

We had Family in town for Christmas!!  I will post more on that, but wanted to share a couple pictures.

   
    
 

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Chemotherapy Day 22

Today is my 22nd day since starting chemotherapy.  Today was the first treatment in round 2.  I started out by seeing my Oncologist, who said everything is going well.  We headed upstairs to the infusion center to check in and find a recliner.  After getting settled I checked my phone to see a ton of notifications on Facebook.  What an awesome surprise to see my family wearing shirts to support me!  The first post I saw was of mis Abuelos, as I was being hooked up for treatment, and of course I teared up and laughed!  Then, I scrolled through and saw ALL the pictures.  You guys are the best!  I couldn’t have a better family, LOVE you guys so much!

I am lucky and very thankful to have my brother, Kurt, and my sister in law in town this week.  Kurt came with me to chemotherapy today and Shar entertained the kids.

I was able to sleep for quite a bit, so that made it easier.  I weighed myself before I left and I had gained 6.2 lbs from all the drugs and fluid.  When I woke up, I used the restroom, and when I sat back down I looked up to see this sweet smile come in the room!  Love you Angie!!



Here is my family sporting their shirts in support!!  I know these pictures are on Facebook, but I wanted them to be all in one place that I can look at.  Thank you Shar for doing the shirts.  I am just missing a picture of David & Jamie and my parents, who have been busy moving out of their condo to a house close by.

Don’t worry, we are coming up with the best way for everyone to get their own shirt, just working out the details!

The kids hanging with their Aunt Shar

Zane is normally my partner at chemotherapy, but is Isaac’s partner at the hospital. Love you to death, too!

 

This sweet boy is still having fevers and they are running more tests to try to find out what is causing it.  If you want to do something you can send Isaac a cheer card, just click on his picture above.

 

Kurt, Shar and Kai!

Absolutely love seeing these two! Abuelo looking good in his mohawk!

Aunt Lynne and Winston

  

Alicia and Adrianna

My aunt Cristina and cousin Deana

 

Joseph, Sarah, Adrianna, and Alicia

The newest addition to the Terry family!!

  

David, Jamie, and Matthew

 

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Off Week

Well, this week is my off of chemotherapy week.  It has been nice.  I have done quite a bit so far.  I went to Isaac’s pre-op appointment on Monday, I took pictures of Isaac, Zane and I took Kyla to see Cirque Du Soleil’s Kurios Wednesday evening, and today we are at Children’s Hospital for Isaac’s second cranial surgery.

Kyla was in awe the entire show!

I have been feeling pretty good.  I do have a constant buzzing in my head, which is very annoying.  I will go see my primary Doctor on Monday for that and see if we can figure that out.  On Tuesday I will start my second round of chemo. 

  
Here is what is most likely the last picture of me with hair.  It is falling out at an alarming rate and Zane has plans to make a nice style before it all hits the floor.

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My Hot Pants

  Yes, this man is my Hot Pants!  A nickname that came from a board game years ago.

This guy is absolutely the BEST man I know.  He’s my best friend, the father to our children (I know he doesn’t look like it😉, but he is), a man of many talents, a man of faith, a hard worker, and he’s been playing Mom for the last two months.  The kids think the world of him.  They all want to sit next to him at dinner, at church, or while watching a movie.

I will never forget the moment I saw Zane after we found out my cancer diagnosis.  He walked in my recovery room and told me he how much he loved me!  Of course, that made me tear up.  Then he told me that he cannot imagine this life without me by his side.  It really had never crossed my mind that there is even a possibility for us not to be side by side for the rest of this life and it hit me how much I take for granted in this life.  I love this man in my life so much!!

Zane and I have a very close relationship and through all of our trials and struggles we have made a closer connection.  Our trials and struggles might seem big and unmanageable to some, but to us they are merely small speed bumps in our road in this life.

Happy Father’s Day to all the amazing father’s out there!

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A Truly Big Blessing

Well, it’s been a year since Isaac entered our family!   A whole year, 365 days, 52 weeks!  It’s hard to believe.  Had someone told us how our life would have changed, we would have laughed.  Ok, well maybe we did laugh, that’s just who we are.  Don’t get me wrong, life is hard and watching your baby struggle is not funny, but we can laugh and find comfort in knowing that we are an eternal family.  One thing that we’ve learned is that Heavenly Father trusts “US”, Zane and myself, with these four little beings in our family and Isaac has made our family complete!

In the last year we have learned a lot more about medicine then we ever planned.  We have met a lot more Doctors and Specialists then we ever planned.  We always wonder if we actually have a week with no Doctor appointments or we’ve completely forgotten them all.  We have met some amazing people and families!

Since last October I’ve been meaning to post about why we named Isaac, Isaac!  The name Isaac was chosen because it was the only name that ever stood out to me when looking at baby names and Zane could only come up with Julio.  Isaac was born 3 years after my grandpa Frank passed away.  We had thought about other middle names, but Frank seemed to fit.  So, Isaac Frank Eagar it was.

In our church we give our infants a baby blessing, a non saving ordinance also known as the naming and blessing of a child.  There are two purposes: to give a baby an official name and to give a blessing for the child’s physical and spiritual welfare.  Isaac was blessed on October 12, 2014, which happens to be my Mom’s father’s birthday.   I really wish I had written down the blessings of our other children.  Luckily between myself and some good friends I have Isaac’s.

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Here is Isaac’s blessing given by Zane;

Heavenly Father,

By the authority of the Holy Melchizedek priesthood which we hold, we take this baby in our arms and give this baby a name and a blessing.  And the name which this baby will have will be recorded in the records of the church is Isaac Frank Eagar.

At this time Isaac I give you a blessing, to let you know that you were a valiant servant to your Heavenly Father.  To let you know that you were a choice spirit that was loved by everybody.  that you are a blessing to us here on this earth.

Isaac we bless you to know that your Heavenly Father has blessed you with this beautiful little body, and although this body has many faults may I remind you of how excited you were to come down and receive this body.  To be able to take the opportunity to play your part to participate in the plan of salvation.

Isaac, I bless you with strength to endure the pains and discomforts that you will feel through life.  I bless you with patience to overcome the obstacles and set backs that you will face as well.

I bless you with happiness knowing that you have the opportunity to be here on earth, to be able to spend time with a loving family and be able to learn and grow and become like Heavenly Father.

Most importantly I bless you with joy and peace knowing that Heavenly Father loves you and he cares for you and he watches you and wants the best for you.

I bless you to know that you have parents on this earth that will go to any means necessary to give you the best life possible and give you as many opportunities as possible to be successful.

I bless you to know that you have a big sister and brothers that adore you and love to spend time with you and will be there to help guide you and show you the way.

I bless you to know that this life is a time for us to prepare to meet God and it is an important step for us to return to him.

I say these things, In the Name of Jesus Christ, Amen.

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Ports have been placed

Well, I had my abdominal port placed yesterday.  It was an outpatient procedure and was painful. 😳 Much more painful then I was expecting.  The abdominal port will allow for chemotherapy to be delivered directly to my abdominal cavity.  This is called intraperitoneal (IP) chemotherapy.

When I had my chest port placed it didn’t hurt at all and I don’t remember it much.  However, I was already a patient at the hospital.  The one thing I do recall is asking the Doctor if I could swim.  I’m pretty sure he asked me why?😐.  Well, I have four kids, it will be summer, and back in March I signed up for a triathlon that’s in August!😂. So, it is very important that I open water swim!

I asked him again yesterday before I was given any drugs, and he told me that swimming was out.  I need to avoid any risk of infection.  It’s probably better anyway, I really wouldn’t want to make other Mom’s at the pool jealous of my stomach!

I don’t have my start date for Chemo, but my orders have been put in.  So, I should know more this coming week.

I can’t make a post without a picture or two!

 Zane and I at Shanahan’s celebrating our 17th anniversary two weeks ago!  I know what you’re thinking and yes we married very very young!!

  Here we are this past Monday!  Since I’m not quite ready to camp or four wheel, we went out for a drive up 285, had a fire, let the kids play, and enjoyed what we love most (being outdoors).   

Here are some pictures of the kids from Monday!