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Off Week

Well, this week is my off of chemotherapy week.  It has been nice.  I have done quite a bit so far.  I went to Isaac’s pre-op appointment on Monday, I took pictures of Isaac, Zane and I took Kyla to see Cirque Du Soleil’s Kurios Wednesday evening, and today we are at Children’s Hospital for Isaac’s second cranial surgery.

Kyla was in awe the entire show!

I have been feeling pretty good.  I do have a constant buzzing in my head, which is very annoying.  I will go see my primary Doctor on Monday for that and see if we can figure that out.  On Tuesday I will start my second round of chemo. 

  
Here is what is most likely the last picture of me with hair.  It is falling out at an alarming rate and Zane has plans to make a nice style before it all hits the floor.

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My Hot Pants

  Yes, this man is my Hot Pants!  A nickname that came from a board game years ago.

This guy is absolutely the BEST man I know.  He’s my best friend, the father to our children (I know he doesn’t look like it😉, but he is), a man of many talents, a man of faith, a hard worker, and he’s been playing Mom for the last two months.  The kids think the world of him.  They all want to sit next to him at dinner, at church, or while watching a movie.

I will never forget the moment I saw Zane after we found out my cancer diagnosis.  He walked in my recovery room and told me he how much he loved me!  Of course, that made me tear up.  Then he told me that he cannot imagine this life without me by his side.  It really had never crossed my mind that there is even a possibility for us not to be side by side for the rest of this life and it hit me how much I take for granted in this life.  I love this man in my life so much!!

Zane and I have a very close relationship and through all of our trials and struggles we have made a closer connection.  Our trials and struggles might seem big and unmanageable to some, but to us they are merely small speed bumps in our road in this life.

Happy Father’s Day to all the amazing father’s out there!

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Chemotherapy Day 8

Yesterday I showed up for my second treatment of chemotherapy, but it is my 8th day since I started.  What a day it has been, not completely awful but not great.

I arrive and check in, order what I think I’ll eat for lunch (did I mention I love food), pick a recliner, and wait for my nurse to draw blood.  Next, we wait for the lab results and the go ahead for me to get my chemotherapy medicine.  Today was a close call, my blood counts were fine, but my sodium and potassium were low.  I really need to do better with my fluid intake.  I was given the go ahead, so my orders were put in with the Pharmacist.  Today was supposed to be a shorter day since I would only be gettin Paclitaxel through the IP port.  Last week I received Paclitaxel in my IV port.  However, the Pharmacist had an emergency drug order that came in, so I had to wait a little bit for my meds.  I was done by 2:30, it’s not like I had somewhere else I needed to be.

My lunch came and I was not able to eat as much as I planned.  Food is starting to taste slightly different.  This treatment I decided to listen to music and I was able to does off for a little bit.  I probably slept 20 minutes, but it felt like hours.

After my meds were done they unhooked me, it was tough to stand up, feeling so heavy with about 2 liters of fluid in my abdomen.  It’s terrible walking out of chemo like you’re pregnant, not so much the way it looks, but the tightness from the fluid😏.  One of these days I’ll have Zane take a before and after picture.  Maybe I’ll wear that cute countdown maternity shirt I made when I was pregnant with Isaac. 😂

So far I feel ok, I’ve been keeping up on the anti nausea medicines and try to sleep and get rest.  Last week it was about Sat & Sun that were the roughest for me.  So, I’m hoping to see if I can do better this week.

Sorry, I forgot to take a picture while at treatment yesterday!  So here’s a picture of my “sunshine” mug one of my B.F.F’s game me!!

 
Next treatment is scheduled for June 30, which will be Round 2.

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A Truly Big Blessing

Well, it’s been a year since Isaac entered our family!   A whole year, 365 days, 52 weeks!  It’s hard to believe.  Had someone told us how our life would have changed, we would have laughed.  Ok, well maybe we did laugh, that’s just who we are.  Don’t get me wrong, life is hard and watching your baby struggle is not funny, but we can laugh and find comfort in knowing that we are an eternal family.  One thing that we’ve learned is that Heavenly Father trusts “US”, Zane and myself, with these four little beings in our family and Isaac has made our family complete!

In the last year we have learned a lot more about medicine then we ever planned.  We have met a lot more Doctors and Specialists then we ever planned.  We always wonder if we actually have a week with no Doctor appointments or we’ve completely forgotten them all.  We have met some amazing people and families!

Since last October I’ve been meaning to post about why we named Isaac, Isaac!  The name Isaac was chosen because it was the only name that ever stood out to me when looking at baby names and Zane could only come up with Julio.  Isaac was born 3 years after my grandpa Frank passed away.  We had thought about other middle names, but Frank seemed to fit.  So, Isaac Frank Eagar it was.

In our church we give our infants a baby blessing, a non saving ordinance also known as the naming and blessing of a child.  There are two purposes: to give a baby an official name and to give a blessing for the child’s physical and spiritual welfare.  Isaac was blessed on October 12, 2014, which happens to be my Mom’s father’s birthday.   I really wish I had written down the blessings of our other children.  Luckily between myself and some good friends I have Isaac’s.

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Here is Isaac’s blessing given by Zane;

Heavenly Father,

By the authority of the Holy Melchizedek priesthood which we hold, we take this baby in our arms and give this baby a name and a blessing.  And the name which this baby will have will be recorded in the records of the church is Isaac Frank Eagar.

At this time Isaac I give you a blessing, to let you know that you were a valiant servant to your Heavenly Father.  To let you know that you were a choice spirit that was loved by everybody.  that you are a blessing to us here on this earth.

Isaac we bless you to know that your Heavenly Father has blessed you with this beautiful little body, and although this body has many faults may I remind you of how excited you were to come down and receive this body.  To be able to take the opportunity to play your part to participate in the plan of salvation.

Isaac, I bless you with strength to endure the pains and discomforts that you will feel through life.  I bless you with patience to overcome the obstacles and set backs that you will face as well.

I bless you with happiness knowing that you have the opportunity to be here on earth, to be able to spend time with a loving family and be able to learn and grow and become like Heavenly Father.

Most importantly I bless you with joy and peace knowing that Heavenly Father loves you and he cares for you and he watches you and wants the best for you.

I bless you to know that you have parents on this earth that will go to any means necessary to give you the best life possible and give you as many opportunities as possible to be successful.

I bless you to know that you have a big sister and brothers that adore you and love to spend time with you and will be there to help guide you and show you the way.

I bless you to know that this life is a time for us to prepare to meet God and it is an important step for us to return to him.

I say these things, In the Name of Jesus Christ, Amen.

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Chemotherapy Day 1

To start off, I had to take oral steroids Monday night before bed and wake up at 2:30 to take more.  The steroids are to help if I were to have a reaction to the chemo drugs.  I did not get much sleep.

Once I checked in at the infusion center and picked out my recliner for the day the nurse accessed my chest port.  She drew blood and sent it to the lab.  We had to wait for the results to make sure I would be well enough for treatment.  My numbers were good, so the nurse ordered my meds and started pre med prep.  She gave me Benadryl, Decadron (steroid), Pepcid, and Zofran.  After the Benadryl I felt extremely tired, but I couldn’t sleep because my legs were so restless.

  

The nurse then started the chemo drug Paclitaxel in the IV port.  It started slow to see if I would have an allergic reaction.  I didn’t react, so my nurse sped up the drip.  After an hour and a half the nurse accessed my IP (abdominal port) port to give me my second chemo drug, Carboplatin.  The port was working really well so the drip ran for about 1.5 hours.  I had to move from side to side every 15 to 20 minutes so the drug would move through out my abdomen.  I was finished with the drips a little after 3:00.

I think I gained 10 pounds with the complimentary lunch ( I do love food😉) and the 2 liters of liquid they pumped into my abdominal cavity.  It felt a lot like being pregnant.  My abdominal port is a bit sore, since they scrubbed it so well before accessing it.

They gave me a schedule to take my anti nausea medicine and I have been sticking with it and so far I have been good.  I slept well last night, I did wake up groggy.  I am just taking it easy and will try to get as much rest as I can.  Taking it day by day as we have no idea what to expect.

My next treatment will be next Tuesday, June 16.  I will be getting the Paclitaxel drug in my IP port.  The following week I will have off.  That week Isaac is scheduled for his next craniofacial surgery.

And of course, it is very hard for Zane and I to be serious, so he downloaded a Meme app and is having way too much fun with it!  

 

My friend had our kids yesterday afternoon and wanted to show support, so she dressed Isaac up.  So cute, I had a good laugh!

 
My amazing friend, Angie, made some images if people wanted to change their profile picture or cover photo on Facebook in support of my battle with ovarian cancer.  I thought I would post them here if anyone wants to save them and use them.

  
   

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Hair is overrated

Is it?  I’ll admit this last week I’ve really been thinking about losing my hair and I guess I’m a bit conflicted.  Part of me thinks, “it’s just hair, it’ll come back.”  Another part of me thinks,”how cool would it be to do chemo and not lose my hair.”  I also think about how the kids will feel when they see their Mom has lost her hair.  I’ve searched the interweb for different head coverings.  Should I wear a wig, hats, scarves, etc?

I decided to go get my haircut short before I start chemo.  As I was driving to my appointment I had time to think about this hair thing.  This was probably the hardest haircut I’ve had, actually it really wasn’t.  However, it did really hit me that this is real and happening.  I realize I do love having long hair, but ultimately that doesn’t make me who I am.  The last time I cut my hair short I donated my hair.  It’s a bit ironic.  I will do this and darn it I’m gonna rock it!

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Zane took this picture of me before I left to get my haircut.


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Kyla took this picture of me when I got home!!

I will be starting chemotherapy tomorrow, Tuesday, June 9.  My Oncologist said I will have 100% hair loss by the third week.  So, I guess we’ll see what fits on my head best.

There are many side effects to chemotherapy, besides hair loss.  My Oncologist gave me 4.5 pages of the different side effects.  Everyone reacts differently, so I don’t know what to expect.  The nurse who scheduled my chemotherapy told me that it’s common to feel as if you have the flu a few days after.  Some common side effects are nausea, fatigue, neuropathy, joint and muscle pain.  To help with some of these effects I’ve been prescribed a medicine cabinet of drugs, it seems.  I’ll hope and pray for the best!  I have to fight like an Eagar!  Just like this Eagar!

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Our good friend has started a You Caring page to help raise money for medical expenses for our family.  If you would like to donate or share our page, please check out the page by clicking the picture of Isaac above.

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Ports have been placed

Well, I had my abdominal port placed yesterday.  It was an outpatient procedure and was painful. 😳 Much more painful then I was expecting.  The abdominal port will allow for chemotherapy to be delivered directly to my abdominal cavity.  This is called intraperitoneal (IP) chemotherapy.

When I had my chest port placed it didn’t hurt at all and I don’t remember it much.  However, I was already a patient at the hospital.  The one thing I do recall is asking the Doctor if I could swim.  I’m pretty sure he asked me why?😐.  Well, I have four kids, it will be summer, and back in March I signed up for a triathlon that’s in August!😂. So, it is very important that I open water swim!

I asked him again yesterday before I was given any drugs, and he told me that swimming was out.  I need to avoid any risk of infection.  It’s probably better anyway, I really wouldn’t want to make other Mom’s at the pool jealous of my stomach!

I don’t have my start date for Chemo, but my orders have been put in.  So, I should know more this coming week.

I can’t make a post without a picture or two!

 Zane and I at Shanahan’s celebrating our 17th anniversary two weeks ago!  I know what you’re thinking and yes we married very very young!!

  Here we are this past Monday!  Since I’m not quite ready to camp or four wheel, we went out for a drive up 285, had a fire, let the kids play, and enjoyed what we love most (being outdoors).   

Here are some pictures of the kids from Monday!

  
        

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Blindsided Again

Today is World Ovarian Cancer Day.  I never thought Cancer would affect my body, but who really does?  

 

I was diagnosed with Ovarian Cancer on April 24, 2015, when I had a procedure to remove my ovaries.  Every woman is at some risk for ovarian cancer – awareness is still the best defense against this disease.  Many times the symptoms are mistaken for something else.  I was not having consistent pain or showing signs of symptoms.

Back in February, I went in for a yearly physical.  At that time there was blood in my urine.  My Doctor had me go back the next week to leave another urine sample.  There was still blood in my urine, so I was referred to a Urologist.

The Urologist sent me to get a CT scan of my abdomen.  Two hours after the scan the Urologist called.  He told me that there was a cyst on my right ovary and I needed to see my Gynecologist.

I went to my Gynecologist in April and had an ultrasound done.  The ultrasound showed that the cyst had solid mass and blood flow.  Not exactly good news. My Doctor said that my right ovary and tube needed to be removed, the sooner the better. So a week and a half later I was at the hospital having what I thought would be a simple non eventful procedure.  

My Doctor did tell me that they would do a preliminary test on the cyst and if there was any signs of cancer he would remove my left ovary as well.  After I woke up from the procedure, my Doctor came in to let me know that he did remove the left ovary and tube, because the preliminary testing showed I had an invasive Cancer.  He told me that I would be doing Chemo and would probably have more surgeries at some point.

All I could think was, “when do I wake up from this horrible dream?”  They wheeled me into a recovery room and Zane came in.  Clearly he was in as much shock as I was.

It was an outpatient procedure, so we left the hospital and headed home.  I was in much more pain then I had expected.  When we arrived at home Zane helped me upstairs and into bed.  At that point I didn’t want to talk or see anyone.

My Doctor called the next day to check on my pain and to see if I remembered what he told me.  I would need to see a Gynecologist Oncologist.  My pathology report came back and it showed that I did have a cancerous cyst in the left ovary as well as the right.  There were also cancerous cells in the washings of my abdomen.  From this report the Cancer was a Stage IC.

Zane and I went to see the Oncologist on the 30th.  Before discussing treatments she wanted to do surgery.  In that surgery she would do a full hysterectomy, remove lymph nodes, remove the omentum, and do a complete staging.  Zane and I decided to not waste anytime and get it done as soon as I could.  I also wanted to feel recovered enough to make it to some of Isaac’s appointments coming up.  This surgery took place this past Monday, May 4.  

Here’s my hospital selfie from Tuesday! I’m wearing the yellow gown as a warning to staff that I should not be doing things on my own.  Ha!

 

Overall the surgery went well.  I came home from the hospital yesterday afternoon and will continue to take it easy and get as much rest as possible.

The pathology report from this surgery showed that microscopic cells were found on one of the Lymph nodes.  This makes it Stage IIIC.  Not exactly what we wanted to hear, but regardless the Stage we are prepared to fight.  While in the hospital I had a port placed near my collar bone, which will be used for Chemo. In a couple weeks I will have another port placed in my abdomen for intraperitoneal injection.  This administers the Chemo treatment directly to the peritoneum (body cavity).

As of now I do not have a date of when Chemotherapy will start, but most likely in the next three to four weeks.

I was looking forward to this summer with the kids, especially since Isaac has been doing well and has gotten a lot stronger.  We’ll just have to take it one day at a time, keep life as normal as possible, and make the most of it!  Our kids have learned to be troopers, love them so much.

I feel so blessed to have such an amazing support system.  I can’t thank everyone enough.  There is no questioning that my parents were supposed to move to Colorado last year.  That in itself has been a huge blessing.

I did follow up with the Urologist who could not find issues with me from his stand point.  I still don’t know why there was/is blood in my urine, but it got me a CT scan that detected the cyst.  So, it truly was a blessing in disguise.

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Three Weeks Post Op

It has been three weeks since Isaac’s surgery and he is doing awesome!  We have been going to see his surgeon weekly and gotten X-Rays each time.  We will keep turning his distractors for another week and then the arms will be taken off.  The hardware will stay in until they do his next surgery which is scheduled for June 25th.  He did get sick this past week, but we have been staying on top of it at home.

Here is a comparison of X-Rays.  From left to right; the day after distractors were placed, 11th day of turning, and 18th day of turning.

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And here is a comparison of pictures that I have taken.

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Isaac doesn’t flinch when we do the turning, however, he cried two different times around the 9th and 10th day, but hasn’t since.  We spoke to his surgeon about it and she said that there were no concerns, especially since it was only a couple times.  He touched them for the first time the other day.

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Isaac sees an Occupational Therapist each week in our home.  He has been doing great and improving each week.  He has been rolling over for several weeks now and he is sitting up on his own.

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Headed Home & Our Soccer Player

I’ve been meaning to write a post for the past two weeks.  I can’t believe it has been two weeks since Isaac had his surgery.  We were told that depending on how Isaac was doing he would be in the hospital for 3 to 5 days to recover.  He was doing so well in the hospital that they sent him home on Saturday the 11th, which was a bit of a surprise to us since we had planned on him at least being there until Sunday or even Monday.

I had gone home Friday night, and was going to bring the kids to the hospital on Saturday to see Isaac.  But, I got a text from Zane while at Barrett’s soccer game that said the Doctor was comfortable with us caring for Isaac at home and they were going to discharge him.  Yay, everyone was so excited!

Here are a few pictures of Barrett from his first two games.  He is so excited to be playing soccer and tries so hard.

His love for soccer started young!  Oh, how I miss when they were so little!

 
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Here are a few pictures of Isaac while he was still in the hospital!

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This is a picture of his cute friend, who also has Apert Syndrome, that stopped by to visit!

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Zane said Isaac was giving him this look when his phone would go off, as if to say,”who are you texting Dad?”

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All packed up and ready to head home!

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