We started turning the distractors today.  We will turn them every day twice a day for 21 days.  Each full turn moves the distractors 1/2mm.  Isaac did not even flinch or react to Zane turning them this morning.

Isaac has been doing great!  He has been playing with his toys and talking, although he mostly says, “dada, dada, dada”.  We have been able to take him for walks inside the hospital.  Joseph and Sarah have been visiting this past week and were able to come and visit us on their way out of town yesterday.  The hospital is still under visitation restrictions, so no one under 13 is allowed on the patient floors of the hospital, but since we were able to take Isaac out the girls were able to see him.  Here are pictures from our walk yesterday.  He fell asleep while we were out!

He had X-rays taken yesterday to check the placement of the distractors.  Zane carried him down to radiology for those. I took pictures of the X-rays.  You can see the plates and you can also see the line where they cut his skull.

Isaac received a cape from Tiny Superheroes, a tiny cape company who seek to empower kids who exemplify strength & determination as they overcome illness or disability.  I still need to get a picture of him wearing it, but here he is in the hospital crib playing.  We also had some friends stop by, who we met in December who have a daughter with Apert Syndrome, and they brought him a sign with his name on it.

He won’t take a pacifier, but he loves his bottles.