We have our own InfANT MAN!!

Isaac had his first surgery yesterday and he did great.  He had a Posterior Cranial Vault Distraction. During surgery they make a cut in the posterior part of the skull and adhere plates and distractors rods.  We will turn the rods daily for 21 days, which will push back his skull and allow for bone formation in between the bone segments.  The reason for this is to expand his cranial vault and give his brain room for growth.

Here is a picture of an infant skull model with the plates and distractors rods.  Isaac’s plates and rods are not in the same location as these.

Here are two pictures of Isaac’s first CT Scan from last September.  You can see that his coronal suture is fused.

His surgery went well!  Everything went as planned.  His ENT was also in the OR to do a sleep study scope, to see why Isaac’s oxygen drops when he is asleep, a Bronchoscopy, a Laryngoscopy, and to check his ears for fluid.  The outcome of all the scopes was that Isaac’s walls in his throat collapse while he is sleeping, so we will be starting CPAP at night.  Isaac had fluid in both ears, so the ENT placed ear tubes in both ears.

Here he is in recovery.  He was pale, I know hard to imagine our kids any whiter, his eyes were a bit swollen and he was very sleepy.

And here is a picture after we moved up to his room.  He did not have to spend the night in the PICU!

Isaac is a strong boy and a fighter!  We are so very proud of this little boy!

One thought on “We have our own InfANT MAN!!

  1. We are so glad we were able to see him before leaving town. We are truly amazed with how well he is doing. He really is a fighter who can teach us all a few lessons about life! We love you guys.

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